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Chest and upper back pain with bronchiectasis and pseudomonas
MAC & Bronchiectasis | Last Active: Feb 1 2:15pm | Replies (131)Comment receiving replies
Thank you for sharing your experience. Knowing others have the same pain makes me feel better because I know it’s from my lung issues unlike what my pulmonologist is telling me. Yes I send in sputum samples each month and they continue to come back positive for pseudomonas. I currently use inhaled gentamicin 28 days on then 28 days off and I’m currently taking an oral antibiotic as well. Nothing seems to get rid of it.
Replies to "Thank you for sharing your experience. Knowing others have the same pain makes me feel better..."
Hi Joann, have you seen your suseptibility test for your pseudomonas? Ask for a hard copy if you do not have a portal in which to view it online. If there is no suseptibility test, ask your dr why there isn't. How can they know which antibiotics will work if that test is not performed?
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It took me 2 or 3 courses of targeted oral antibiotics, plus 28 days of inhaled Tobramycin, to beat down the pseudomonas. This was after almost a whole winter on an assortment of other antibiotics for "chronic bronchitis." After that I did an 18 month course of the "Big 3" antibiotics to beat down (but not completely eradicate) MAC. Now I am on 7% saline nebs, which I hope are keeping both from growing again.
Sue