← Return to Chest and upper back pain with bronchiectasis and pseudomonas

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@anunez

Joann your experience is similar to what many of us have been through. I can relate to you saying that two years ago you were functioning so much better.
I dealt with chronic coughing and excessive mucous for 4 years before I finally got some relief. I also have been told that I have mild bronchiectasis. I believe my bigger issue was chronic pseudomonas aeruginosa infections. I used multiple courses of oral antibiotics which would make me feel better for short periods of time. During my worst time I had pain in my chest and sometimes my back directly behind my lung.
It wasn’t until I did my own research and asked for inhaled Tobramycin that I finally got better. My cough and mucous have declined significantly. My most recent sputum sample was free of pseudomonas. I’m not sure it has been eradicated for good but I am so much better.
Have you submitted sputum samples? How many times?
I just want to repeat what you have heard from others. Educate yourself and be your own advocate. If you have the opportunity for a second opinion take advantage. Good luck and don’t lose hope.

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Replies to "Joann your experience is similar to what many of us have been through. I can relate..."

Thank you for sharing your experience. Knowing others have the same pain makes me feel better because I know it’s from my lung issues unlike what my pulmonologist is telling me. Yes I send in sputum samples each month and they continue to come back positive for pseudomonas. I currently use inhaled gentamicin 28 days on then 28 days off and I’m currently taking an oral antibiotic as well. Nothing seems to get rid of it.

@anunez, Your story sounds identical to mine, except that my cough went away entirely in 2016 after the tobramycin. Bear in mind, because we have bronchiectasis; we always have the chance of getting these various infections back again. That is why it is so important to do the saline treatments to keep your lungs clear. Do not give fodder to bacteria!