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Chest and upper back pain with bronchiectasis and pseudomonas
MAC & Bronchiectasis | Last Active: Feb 1 2:15pm | Replies (131)Comment receiving replies
I am looking for a new PCP also as mine won’t even give my anything for my bronchiectasis , let alone anything for pain, that stabbing in between my breasts that is so bad I can’t even inhale. I live in a very rural area, can’t drive with a rare genetic disease and the DHS here just took my Dual Eligibility I was awarded, both in November of 1995 from the Social Security Administration in Baltimore. Maryland , because the DHS said I could paint my toenails. I’ve about lost all hope in living 6 more months. Every day is such a struggle and it’s all wearing me down, down , down.
Replies to "I am looking for a new PCP also as mine won’t even give my anything for..."
Hi Jill. Please don't ever give up hope that you can feel good again. I have been in your shoes before, for many years. I had the burning pain between my breasts and it turned out to be silent acid reflux. I had the beginning of Barrett's Syndrome, which is a condition of your esophagus getting erroded by gastric acid coming up from the stomach. I also had what I called 'my rotten' spot on my back near my right shoulder blade. I believe I may have had a torn muscle there from yrs of chronic cough. Once my mac & pseudomonas infection got cleared out, these other maladies also went away. I know how near death this disease can make you feel. Girl, I got my Living Trust done and tied up all loose ends thinking that I wasn't going to live out the year. That was back in 2013. In 2016 I was pre-qualified for a lung transplant, which I ended up not needing (now anyway). I have diminished lung function. I am at 37% now and have shortness of breath, but my quality of life is so much better. I do pretty much anything I want to do (except snow skiing)! With diligence in self care; you can pull through this. As for your pain in your sternum, have you addressed that it may be due to acid reflux (GERD)?
Years ago before my bronchiectasis and MAC diagnosis I had stabbing intermittent chest pain in that area that I had to call EMT for ER. The ER doc found no reason to keep me but super high BP was all she said in a nut shell. After the event was over, I had pain on breathing in that hurt so bad I had to take pain reliever. Then I never had it again. It is still a mystery to me. Don’t give up hope just yet! Our lowest times, I find, are often just before some good and peaceful times! I will keep you in my thoughts today in hopes for your Chest pain relief and overall good days to come!
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I’m sorry you are struggling with your conditions and situation. I understand the feeling of getting zero relief. I think once we find a PCP that will listen and understand things will start to move in the right direction. Until then it is up to us to care for ourselves. One thing I learned from this site is be your own advocate. Good luck to you.