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ahurlbert30 (@ahurlbert30)

Bone pain from Neulasta (pegfilgrastim)

Breast Cancer | Last Active: Oct 11, 2020 | Replies (21)

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@trixie1313

@hopeful33250
I was given Taxotere and cyclophosphamide (TC) for the first lesion. It was thought at lumpectomy that the first lesion was totally removed, but the margins apparently were not wide enough at pathology. Prior to going back for that, I requested MRI breast and that's when the second lesion was discovered. I'm so glad I followed my gut and had a surgeon who said yes to the MRI as that is not standard care, just bone and body scan. And, had it not been the pathologists at that hospital center doing the staining technique, the NET probably would not have been diagnosed. Except for diarrhea, I don't believe I've had any carcinoid symptoms and my diarrhea was probably due to diverticulosis/itis. I've been presented to there different Tumor Boards (3 different facilities at Kaiser Permanente) and my follow up was to be PET scans at 6-month intervals, but now it will be 3 due to the new lesion which at this time is too small to biopsy. One day at a time, right?!

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Replies to "@hopeful33250 I was given Taxotere and cyclophosphamide (TC) for the first lesion. It was thought at..."

Yes, absolutely, one day at a time, @trixie1313. You've had quite a journey with cancer. I so admire your attitude. It sounds as if you have found some good medical care which is important. You've also advocated for yourself. I would never have thought about an MRI of the breast but I'll keep that in mind if anything shows up in the future.