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ahurlbert30 (@ahurlbert30)

Bone pain from Neulasta (pegfilgrastim)

Breast Cancer | Last Active: Oct 11, 2020 | Replies (21)

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Hi @trixie1313,

No, my NETs were more typical and in the upper digestive tract (three surgeries so far). NETs in the breast are a rare type of NETs from my understanding. I'm glad to hear that you are getting regular follow-ups for the breast NETs, I hope your next scan in clear or at least shows no enlargement.

What type of treatment did you have when your breast NET was discovered? I'm assuming surgery (lump removal) but was there any other follow-up treatment? Did you have any carcinoid syndrome symptoms?

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Replies to "Hi @trixie1313, No, my NETs were more typical and in the upper digestive tract (three surgeries..."

I was given Taxotere and cyclophosphamide (TC) for the first lesion. It was thought at lumpectomy that the first lesion was totally removed, but the margins apparently were not wide enough at pathology. Prior to going back for that, I requested MRI breast and that's when the second lesion was discovered. I'm so glad I followed my gut and had a surgeon who said yes to the MRI as that is not standard care, just bone and body scan. And, had it not been the pathologists at that hospital center doing the staining technique, the NET probably would not have been diagnosed. Except for diarrhea, I don't believe I've had any carcinoid symptoms and my diarrhea was probably due to diverticulosis/itis. I've been presented to there different Tumor Boards (3 different facilities at Kaiser Permanente) and my follow up was to be PET scans at 6-month intervals, but now it will be 3 due to the new lesion which at this time is too small to biopsy. One day at a time, right?!