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@jesfactsmon

@bustrbrwn22
Sounds like the people in your life that you are referring to need to wake up. It must be that they do not have an ability to understand what living with the dire circumstance that is chronic pain is like. I do not have chronic pain. But I live with someone who does. I know that she has never in our 42 years been the type to over exaggerate her problems. If anything she is pretty stoic and I often do forget because I can be sitting next to her for 2 hours watching TV and she seems normal outwardly. But when I ask her to describe what her pain is like for her various conditions, it can sometimes be that she has been sitting there with a pain level of 8 during that time. It's a real eye opener. And yet I still do forget. Regularly. A person not in pain has a hard time truly understanding what life is like for a chronic pain sufferer.

I do try to keep in mind what she is going through and I am very solicitous of her. But to really understand it, I believe I'd have to walk in her shoes. Literally. That is why I would truly love to live through one day of her worst pain days. Then maybe I could relate more and maybe not forget so often. Hank

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Replies to "@bustrbrwn22 Sounds like the people in your life that you are referring to need to wake..."

@jesfactsmon Hank. It’s so weird you should say this. Last year my husband and I were watching a very long movie. I’m a quiet watcher and it was hours long. At the end of the movie, more than 3 hours long, he saw tears out of the corner of my eyes. He looked at me and kind of asked what was wrong. I told him I hadn’t watched hardly any of the movie. I was having a panic attack the whole time. He then began to understand that I don’t move or complain I get very still when anxious, having a panic attack or in pain. Which makes me just a joy to be around! However now at least once a day he stops in by wherever I am and asks how I am and do I need anything. Thank you, Hank.

@bustrbrwn22 @jesfactsmon and to all my Pain warriors, I read your description of severe pain, panic attacks, agorophobia, and my heart breaks. I know pain all too well, and have learned that most people in my life just don't understand or don't really want to be involved. However, I do believe you have to really experience it, to really understand it. I tell my husband all the time about the severity of my pain, but he never asks. This is a reflection of lack of intimacy in my marriage, and there are so many reasons for that. I have a very forgiving heart, and think that most of us are on this earth giving what we have to give. We can't give, what isn't there. And if people have little or no empathy, they just don't have it. We can't give, what we don't have. I have to be emotionally strong with my Neuropathy, as I don't have many people to really share with, or frankly, people that give a damn. Sad, but true. Maybe I have done something wrong, in not getting the comfort from people that I need. But frankly, I doubt it. My problem has been being a poor judge of human character, and picking the wrong people in my life. Thankfully, I do have one or two very good ones. That is all I really need to thrive. I had a sense of isolation way before my Neuropathy. At my age, and with my illness, and Covid, I don't think meeting new people, really good people, are in the cards for me. But I am so thankful for all of you here. You get it, and you care. Lori Renee