Connect
← Return to Neuropathy Medications
Discussion
Comment receiving replies
@jesfactsmon @rwinney First, Hank, I am glad I help you too!! I get sick of myself and my pain terribly. If I can get out of my sickness, and help you, then I am happy. Rachel, I was just thinking about you and if you are still managing to walk better. I have read your post, and marvel how strange the human body and spirit really are. You did all that walking on your get away, and now, are not able to again. I understand this totally, as I see the unpredictability of Neuropathy, totally. It kills me that you have trouble in so many places, and yet you have this flicker of hope that seems to shine most of the time. Two nights ago, I watched TV for hours, pain free. Last night, the pain was excruciating, even with the DRG. I do not begin to understand and do not even try to figure things out anymore. I think that as humans, we want to be in control, but there is no control with Neuropathy. I control only myself, and walk daily, and do specific foot exercises. I am exhausted still from surgery. I try to do my best, and that is all I can do. The Neuropathy is stronger than me. I just try to distract myself, and cry when the tears come. I am so sorry your ability to walk has lessoned. I think maybe you had this huge adrenal rush because you wanted to walk so very much on your vacation. Kind of a fight or flight reaction. Hank, I am glad that this Forum helps you. I do think you need all of us, as you have your burdens at home. Love to you both, Lori
Replies to "@jesfactsmon @rwinney First, Hank, I am glad I help you too!! I get sick of myself..."
@lorirenee1 Wow Lori, you had what Linda had 2 days ago, a pain free period of time. I think it was Saturday or it might have been Friday, but I came into the living room and sat on the couch and she said to me "I am not feeling any pain!" I was blown away and of course she was even more blown away. A couple hours later she came to me with a wry smile on her face and she said "I still am not feeling any pain. My feet have no pain, my headache is mostly gone, my tinnitus is at a very low level". Then she started to well up with tears. "Its been SO LONG since I felt like this" she said. "I can't believe it". A few hours later she said she was still mostly pain free although things had begun to fire up. Anyway, it was pretty much over with, the miraculous part anyway. Not sure why it happened or if/when it will again. We can't figure out anything to attribute it to. But it was a wonderful day. Best, Hank
Very well said Lori! All of you are precious souls! Caring deeply, Sunnyflower 🙏❤️
Connect
@lorirenee1 You nailed it Lori Renee! I could do that nature trail again if at the right moment, on the right day. Adrenaline is huge as well as distraction, as you and I both know. The unpredictability and lack of consistency makes me/us crazy. I'm happy you had a couple of free hours pain free. That is a rejuvenation and exactly what you needed. I totally get it and live it with you and others who read these posts. Neuropathy is getting the better of me lately and I hate every bit of that feeling. I'll keep working to try and defy this disease but, admittedly so, its friggin exhausting. My best to you Lori. Thanks for your words. XO
Rachel