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@jesfactsmon Hank - Yes, I continue to walk as best I can. Some days it isn't worth the pain. The unpredictability of how this disease affects my body is dumbfounding. If I have a couple of calmer days in my legs, then my shoulders, back, arms, hands flare. My legs have days of aching only, and I consider that a win. Walking for me remains a slow, several stops to break, challenge. At best I walk a block and back. Some days are easier than others but, never normal. My legs by all means feel better than last year! I continue to walk and excercise them so hopefully they never get that bad again. Last year, at that time, I was nursing back my B12 levels and that is what I believe is the difference of this year. My legs still have varying degrees of weakness, heaviness, burning, tightness, calf and quad pain, cramping, twitching or aching. Things may come and go by the day, or take weeks to come back. Some things never leave but, flare to varying degrees. The unpredictability makes it hard because I am a hopeful person and if I ever get a day or back to back days of betterment, I secretly think maybe I'm finally healing or am in some kind of remission. Then I'm reminded otherwise. But, maybe it's about a month of feeling better, or a year. Cant put parameters on hope. Thank you for your warmth and concern.
Wishing you and Linda well.
Rachel
Replies to "@jesfactsmon Hank - Yes, I continue to walk as best I can. Some days it isn't..."
@jesfactsmon @rwinney First, Hank, I am glad I help you too!! I get sick of myself and my pain terribly. If I can get out of my sickness, and help you, then I am happy. Rachel, I was just thinking about you and if you are still managing to walk better. I have read your post, and marvel how strange the human body and spirit really are. You did all that walking on your get away, and now, are not able to again. I understand this totally, as I see the unpredictability of Neuropathy, totally. It kills me that you have trouble in so many places, and yet you have this flicker of hope that seems to shine most of the time. Two nights ago, I watched TV for hours, pain free. Last night, the pain was excruciating, even with the DRG. I do not begin to understand and do not even try to figure things out anymore. I think that as humans, we want to be in control, but there is no control with Neuropathy. I control only myself, and walk daily, and do specific foot exercises. I am exhausted still from surgery. I try to do my best, and that is all I can do. The Neuropathy is stronger than me. I just try to distract myself, and cry when the tears come. I am so sorry your ability to walk has lessoned. I think maybe you had this huge adrenal rush because you wanted to walk so very much on your vacation. Kind of a fight or flight reaction. Hank, I am glad that this Forum helps you. I do think you need all of us, as you have your burdens at home. Love to you both, Lori
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@rwinney Rachel I just sent you a private message. Hank