@jesfactsmon Hank - Yes, I continue to walk as best I can. Some days it isn't worth the pain. The unpredictability of how this disease affects my body is dumbfounding. If I have a couple of calmer days in my legs, then my shoulders, back, arms, hands flare. My legs have days of aching only, and I consider that a win. Walking for me remains a slow, several stops to break, challenge. At best I walk a block and back. Some days are easier than others but, never normal. My legs by all means feel better than last year! I continue to walk and excercise them so hopefully they never get that bad again. Last year, at that time, I was nursing back my B12 levels and that is what I believe is the difference of this year. My legs still have varying degrees of weakness, heaviness, burning, tightness, calf and quad pain, cramping, twitching or aching. Things may come and go by the day, or take weeks to come back. Some things never leave but, flare to varying degrees. The unpredictability makes it hard because I am a hopeful person and if I ever get a day or back to back days of betterment, I secretly think maybe I'm finally healing or am in some kind of remission. Then I'm reminded otherwise. But, maybe it's about a month of feeling better, or a year. Cant put parameters on hope. Thank you for your warmth and concern.
Wishing you and Linda well.
Rachel