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You are definitely not alone So sorry you are not getting relief. My neurologist calls my pain that started about a month after my stroke (June 2018), Central Pain Syndrome
It’s like there’s a line dividing the left and right sides of my body The left is non stop burning, tingling, numbness in parts and pretty intense. my 7 year old grandson just asked if it’s like when people put those buzzers in your hand on April Fool’s Day and shake your hand to shock you.... except it’s all the time top to bottom. I thought that was a pretty brilliant description
Neurologist has tried multiple meds.. including gabapentin, Lyrica, many more... to no avail
Also tried acupuncture, all kinds of therapy.
My internist suggested medical marijuana.
Haven’t checked it out yet. My best relief is reading; I get lost in the story for a bit.
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@irishnanny3 Hi there. I take Lyrica (not sure it really helps), Norco (hydrocodone) 5mg and because that is not enough for relief and I dont want a higher opioid dose, I use medical marijuana by tincture. Oil under tongue. It treats my pain different from an opiod. If I rotate the 2 I get the best relief I can. Unfortunately, some days are so atrocious I'm still in pain regardless of both. Those are the days I rest and dont use my body...limbs, hands, etc... Heat and ice are saviors to me and bring comfort to inflamed areas. If MM is legal in your state, I'd listen to your internist and give it a try. Much hope is wished for you.
Rachel