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Brain & Nervous System | Last Active: Mar 20, 2021 | Replies (30)
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@undiagnosed2013 Welcome to Mayo Clinic Connect, a place to give and get support.
It sounds like you are seeking proper medical care with no answers yet. Having muscle atrophy with no known cause must be terrifying.
You'll notice that I moved your question to a previous discussion. I did this so you could connect with members like @kengroninga @rivergirl8243 @bustrbrwn22 @lineage @jenniferhunter @jakedduck1 @wisco50 that have discussed this topic before.
May I ask if you have any next steps planned?
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No, since I really don't know who to turn to. I have already been to Mayo, and I just not sure where to go? I loved the Mayo experience, but I was pushed to a Neuro workup, which seems like a no brainer, but I have maintained that the issue is related but not directly to Neuro. I asked if I could find out, even pay for, if the lab could examine the pills I bought over the internet to see if I was poisoned, but was told that no one knew of anyone at Mayo to do that. So, I am trying to just do the best I can. But, it's heartbreaking to know that if I were a VIP, that that would have been done.