“Lineage”, As I was reading your letter and then Jennifer’s response, I was wondering if any pain intervention doctor OR neurosurgeon had suggested that you try selective nerve root blocks at the levels of compression in your cervical spine? That can be done by one of those specialties or maybe even an interventional radiologist. They may only do one level at a time so they can find out what works/doesn’t work instead of doing multiple levels at once – the latter muddles the picture. More travel and pokes for you, but it is important to clarify the situation. I had both my neck and back done when I was being diagnosed. I’ve had both neck and back fusions and was a RN x 43 years, so speaking from multiple aspects of viewpoint!
Another thought is you could get an opinion on whether one of MD types I mentioned would consider trying this on you – at this point – by looking at your scans and chart online. Then maybe if you traveled to get one, you would know ahead of time why you were going back instead of feeling like wandering in circles. It is VERY frustrating to not get clear answers. As was said, you really have to be your own advocate these days! Not fun when you are already under the weather, but an evil necessity from my patient perspective!