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Ehlers Danlos Syndrome - Who is the best doctor to see?
Bones, Joints & Muscles | Last Active: Sep 7 11:54am | Replies (52)Comment receiving replies
@healthhopefreedom You are extremely organized and it sounds like you have a lot of information to present to a provider.
May I ask if you receive care in the same location and if providers are able to access all of your notes easily in one system and if you are at a hospital system that is known to communicate across departments?
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The only location I’m willing to go is Mayo Clinic because they all have access and work together for my care. Cant get that anywhere else. I spent 15 years wasting my time trying locally. I live an hour and a half away from My Mayo.