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@healthhopefreedom

Yes! I just got it in the mail today, actually. I do write them down but I end up forgetting to open the notebook at the appointment. My appointments (I’ve probably had 20-30 in the last 4 months) are overwhelming me. So I have organized all of my 15+ Years of medical records into a binder with tabs for each bodily system but that seems to prove inefficient for transport and discussing everything with doctors because it’s just so much. So I ordered a journal this week and already completed day 1. I also screenshot some of the things I typed in the forum about my symptoms and told my doctors as well. They thanked me.

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Replies to "Yes! I just got it in the mail today, actually. I do write them down but..."

@healthhopefreedom You are extremely organized and it sounds like you have a lot of information to present to a provider.

May I ask if you receive care in the same location and if providers are able to access all of your notes easily in one system and if you are at a hospital system that is known to communicate across departments?

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