@gladiator14 I sense from your question that you are unsettled about the information and care you have received thus far. I ABSOLUTELY think you would benefit from a second, third, or forth opinion! I joke with a fellow transplant patient that most people wouldn't remodel a bathroom without talking to three contractors but they trust their life to the first doctor they meet. Doctors (like bathroom contractors) exist in good and bad versions everywhere you go the trick is putting in the hard work to find them. I see doctors both at Mayo and outside of Mayo and I have them all exchange records electronically. I choose my physicians based on a variety of factors that are personally important to me not what institution they affiliated with or the state they live in. In my experience I have encountered a greater concentration of brilliant providers at Mayo than anywhere else. So if you are looking for a shortcut in finding a good doctor the odds are stacked in your favor by choosing Mayo. Best of luck.