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MAC Question

MAC & Bronchiectasis | Last Active: Sep 6, 2020 | Replies (18)

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@shooei

My pulmo wouldn't give me one last time. Says once you have MAC you always have it. My next appointment is in 6 months, and I am going to ask for one again. He usually concedes if I beg 😁.

Are you just wondering (like me) if it is negative, or if it is just being held at bay?

Also, do you think I should have another CT at some point? He doesn't repeat those either (just goes totally by symptoms) but I really want to see if it is getting better/worse/maintaing. Though I don't want to irradiate my body more than necessary! Thoughts?

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Replies to "My pulmo wouldn't give me one last time. Says once you have MAC you always have..."

Shooie, originally, it was the opinion to have a 5 yr interval between ct scans because they are very powerful and can disrupt and damage cells. From what I have heard from others is that ct radiation levels have been lowered and now there is a 2 yr interval. I have not looked it up yet to see if that is true, but I will. Your dr may be thinking that a regular sputem test is unessessary because mac is a slow grower. I think it is important to get a sputem test every yr or sooner if you have a bad exacerbation. Reason being; you may have pseudomonas growing in your lungs or some other bad organism. We are at risk to other 'bugs' infecting us due to having bronchiectasis. I would stay on top of your lung health. I chose not to treat mine back in 2005 and have permanently lost a lot of lung function I think as a result of my decision.