@ken82 – You are correct. We should take notes on information found here referring to your condition and then discuss it with your doctor.
Doctors are different-
One type may hide ignorance by denying anything is wrong with you and even recommend therapy for anxiety.
Another type will admit that they are not really up on what you ask and leave it at that or prescribe something different.
My type of doctor reviews your records to see what findings there are already, if tests have not been ordered and what specialists have reported. This doctor will also admit he/she does not know enough, but will make phone calls or similar with experts to get a better picture of the illness and possibly then refer out as well as schedule follow up so patient doesn’t get lost in the system.