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Rifampin discontinued due to side effects. Looking for feedback.
MAC & Bronchiectasis | Last Active: Nov 19, 2020 | Replies (44)Comment receiving replies
I had been taking the big 3 for several months and had to stop taking Rifampin. My ID doc at Vandy said studies were ongoing at National Jewish Health testing to see if Rifampin was really doing any good, her opinion was that it was probably not. I started taking Arikayce instead, along with Azithromycin and Ethambutol. I gave a sputum sample 5 weeks ago and as of today it is still negative. Holding my breath for another week or so.
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Hi poodledoc! Are you a Veternarian? I have a poodle and we love her so much she’s a toy poodle at 7 pounds —12 yrs old. I love dogs!
I find your discussion very interesting because I’ve been trying to find somebody that’s on Arikayce!! Can I ask you how long you have been on it ? I have been on it going on three months. Mild Sore throat and raspy voice are my symptoms. I have not taken any sputum specimen yet do you suggest that I need one now since I’ve been on it two months or should I wait? My doctor here in Clearwater and my doctor at NJH I have not said to send one but I a have to advocate for myself most of the time and call the doctors. I have clear sputum with pink plugs of sputum in it and I wondered if your Mac Expectorates are manifesting That? I wonder if the Arikayce kills the bacteria and then I cough up The dead MAC. I don’t know if that’s the way it works but it would be interesting since I keep bringing the same stuff up. I would love to hear what you know about taking this med. Thank you so much
Hi Bill (Poodledoc). Got to love those Negative test results. So glad for you!
Hi Poodledoc. Did you get culture results?
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@poodledoc That is wonderful news! I am so happy for you! irene5