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Rifampin discontinued due to side effects. Looking for feedback.

MAC & Bronchiectasis | Last Active: Nov 19, 2020 | Replies (44)
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@irene5

@kayskid I’ve started this several times so hopefully I can finish it. There have been studies that suggest Rifampin is not needed as a third med. Rifampin can interact with thyroid medication as well as others like Premarin. So if you can go without it, it should be ok in terms of MAC outcome. Unfortunately, some of us are on the meds for a long time. Weight loss also happens for some of us. If you can drink Ensure or other nutritious, high calorie, and protein drinks (Ex. Garden of Life) that might be beneficial for you. Your becoming dizzy etc. may have been a result of wearing the mask up all those flights and breathing in all that CO2. Take care. irene5
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Replies to "@kayskid I’ve started this several times so hopefully I can finish it. There have been studies..."
judyhodgern | @judyhodgern | Aug 21, 2020

Thank you!

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rits | @rits | Aug 22, 2020

I took two doses of rifampin and had to stop due to cramps so bad that I considered going to the er. My doctor told me about the studies and said it was not necesary to substitute a third drug. That was in March 2019 so I would think the results should be ready soon. I am one of the lucky ones. The two drugs worked and I was negative by June 2019. I stayed on the two drugs until May 2020 and also did 4 months of Arikayce. My latest sample apparently was lost on the mail. I need the lab in Tyler to send me more mail in kits.

I hope Arikayce works for you. You have been dealing with this long enough!

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