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DiscussionSaying Hello! Just had surgery for a pituitary tumor
Brain Tumor | Last Active: Feb 8 5:39am | Replies (9)Comment receiving replies
Replies to "It is so nice to meet you Teresa.......thank you for your response. I am so new..."
@daphne2020 - I welcome you too!
My daughter had a pituitary adenoma removed 10 years ago at 27. She had Cushing’s disease, cortisol producing benign tumor. Yours was non- functioning? That’s great! Is your vision problem resolve on its own? My daughter lost peripheral vision just before surgery, but it resolved on its own after surgery.
The sinus issues you mention are most likely from the surgery- they usually enter under upper lip.
Her surgeon was also not sure if any tiny part remained because of how close it was to the carotid artery. Nothing showed on follow upMRIs. The surgeon told her that if it was still some cells left she could be treated with gamma knife, I believe.
Nobody feels normal after that surgery- it will take some time. You are right, nobody around you understand what you have been through- you look normal. It’s like an invisible illness.
I hope some of the others with pituitary experience will also respond to your post.
Hang in there - it will get better-
Daphne, about your double vision, I experienced that as well, I had a brain surgery in 2015 to remove a craniopharyngioma. I bit of my pituitary was involved and that led to double vision. I needed to keep the eye covered and the "always fashionable" black eye patch just wasn't the answer. Because I wear glasses I knew about the existence of clip-on sunglasses. I bought a pair, had the dark lens removed so the good eye could see and left the dark lens in place to act as a patch for the eye that needed more healing time. Did I look silly wearing a half pair of sunglasses? Most certainly. Did I have fewer headaches because the double vision was temporarily fixed? Yes, thankfully. Do I think you should give this method a try? If you can diminish the number of headaches you experience without taking a pain reliever that makes it worth the effort.
Stephanie
Daphne, my tumor sounds very similar to yours and initially was affecting my eye sight but now is all is good. My surgery was in 1993. I am happy to report that you can and will live a long normal life. The feelings of anxiousness every time something doesn't seem right, will diminish in time, Be diligent in your medical appointment as they will provide you with comfort. Good luck and let me know if you have questions. As a person that has lived with this for a long time, i may be able to shed some light on things that pop up. Best of luck to you.
Hi @daphne2020, I'd like to add my welcome. You posted perfectly in the Brain Tumor group, where you'll find members talking about pituitary tumors in several discussions, including the one that @hopeful33250 pointed out to you. Here's a brief inventory:
- Looking for others with Pituitary Adenoma https://connect.mayoclinic.org/discussion/i-like-to-now-if-their-is-anyone-who-has-been-diagnosed/
- Pituitary brain tumor removed, daughter has nerve pain 10 years later https://connect.mayoclinic.org/discussion/post-brain-surgery-nerve-pain/
- Pituitary microadenoma causing hormonal issues https://connect.mayoclinic.org/discussion/pituitary-microadenoma/
- Pituitary macroadenoma tumor removal and short term memory loss https://connect.mayoclinic.org/discussion/pituitary-macroadenoma-and-short-term-memory-loss/
- Pituitary tumors https://connect.mayoclinic.org/discussion/pituitary-tumors-1/
I'd like to bring fellow members, like @astaingegerdm @dmedina71 @ladydove417 @parrotqueen @beckymattair @cherriann @cheryl1 and @gemttaz to join this conversation to share their experiences with surgery and recovery.
Daphne, I can imagine that using a computer screen all day must be a challenge with recovery. Are you on video calls or audio only?