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Seizures: Monitoring device

Epilepsy & Seizures | Last Active: Sep 26, 2020 | Replies (17)

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@eeegreen

@hopeful ~ yes, Dilantin is the new Rx.
My doc is going off of the MRI that I had in ER after my second fall down/pass out seizures in two days. We’ve had one virtual & three phone calls. She seems surprised every conversation when insurance is brought up, and she asked me Wednesday just How she became my neurologist. I think she wants to see how I do on new meds, there’s been no mention of an in-person visit. I wait to cry after the calls. She refers to my symptoms as seizures, and epilepsy is included in the conversations. Can I assume that I’m diagnosed as having epilepsy?

I’d like to ask you a question, please don’t feel like you have to answer.
How? How did you find the way? From what you’ve said, your road with epilepsy has been very long and difficult.
Yet. Here you are. Taking time for the newbie. Thank you. It means the world.
~Erica

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Replies to "@hopeful ~ yes, Dilantin is the new Rx. My doc is going off of the MRI..."

@eeegreen
“Can I assume that I’m diagnosed as having epilepsy?”
If you have had 2 or more unprovoked seizures Epilepsy would be a reasonable conclusion to come to.
Have you had a MRI or EEG & if so were they normal or abnormal?
Take care,
Jake

@eeegreen
“Dilantin is the new Rx.
My doc is going off of the MRI”
Could you clarify the above statement? Did you have a lession/s on the MRI?
Be sure to have your Dilantin level checked regularly. One of my Neurologists years ago refused to give me a lab slip for my level so I drove to my out-of-town primary care doctor and she authorized the test but driving home I had a seizure. As it turned out my level was low.
A common side effect of Dilantin is red swollen gums that can bleed easily. Good oral hygiene is important since it could lead to more serious gum diseases.
Doctors usually order Dilantin to be taking 3 to 4 times a day but it can be taken once a day. I was on Dilantin for 25 or 30 years. My doctor believes that’s what caused my neuropathy.
Hopefully it will control your seizures,
Jake