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Seizures: Monitoring device

Epilepsy & Seizures | Last Active: Sep 26, 2020 | Replies (17)

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@1634517678

Sorry for the few words posting. I accidentally hit Post Reply.

mmas asked about heart monitors and epilepsy monitors. Heart monitors aren't really epilepsy monitors, or at least minimally. mmas, I think, was concerned about epilepsy during the night. A heart monitor wouldn't provide much epilepsy info beyond a seizure in progress. A seizure would change heart rate. The monitors shown on the Epilepsy Foundation link are pretty basic for user purchase and track minimal amounts of seizure activity versus a unit that tracks (per the spread sheet I saw in the neurologists office) several kinds of electrical activity. Not being a neurologist or able to understand all the lines on the tracking sheet I was shown I couldn't make a recommendation for type of unit. Example: When in a hospital, not for epileptic monitoring, next to a bed would be a TV screen that tracks 6-7-8 types of body function. In the neurologists office, there were 10+ tracking lines for brain only. It sounded like mmas wasn't entirely sure of what they wanted/needed to view and be alerted to.

Tracking remotely at time of unit use, during that 3 days, no none. All info was collect inside the unit. That contractor transferred that info to the neurologist several days later.

I also responded to eeegreen as it sounded like she was perhaps new to epilepsy. Too, new to a few other upsetting things. She was responding to my post and that's where I led the post astray.

Sorry for my responses that were off the original topic by mmas, the Monitoring Device. I guess a little too much info on the monitoring device.

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Replies to "Sorry for the few words posting. I accidentally hit Post Reply. mmas asked about heart monitors..."

@1634517678, you hit the nail on the head. When considering a device, one needs to be clear on what they want the device to do:
To notify someone when a seizure occurs by alarm, text message or phone call.
• To track and record how often seizures occur.
• To learn what your or your loved one's seizures look like.
• To have a safety check during or right after a seizure.
• To let someone know where you are if you are alone during a seizure.

This factsheet from the Epilepsy Foundation helps guide people to choosing the right device for them
- Considering a Seizure Alert Device https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdf