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Seizures: Monitoring device

Epilepsy & Seizures | Last Active: Sep 26, 2020 | Replies (17)

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Erica, The no insurance part of your post is a problem for a lot of us. The only way I got Medicare is because I had to be defined as disabled. That can be an odd process. I went through an attorney because I was unable to write, think cognitively, remember conversations and didn't know anyone who knew how to do it. It took 2.5 years to get it done here in Colorado. I have heard 6 months in California, but that was 18 years ago. I don't know the what/how long/short process may be. I'm fairly well sure you will need to have a diagnosis of epilepsy. Sounds like you don't. Again, Mayo should be able to step in here for that order.

Drugs, letter "D" you may be talking about,, Dilantin.

Has you neurologist said the reason he isn't seeing you in office is because of no insurance?

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Replies to "Erica, The no insurance part of your post is a problem for a lot of us...."

@hopeful ~ yes, Dilantin is the new Rx.
My doc is going off of the MRI that I had in ER after my second fall down/pass out seizures in two days. We’ve had one virtual & three phone calls. She seems surprised every conversation when insurance is brought up, and she asked me Wednesday just How she became my neurologist. I think she wants to see how I do on new meds, there’s been no mention of an in-person visit. I wait to cry after the calls. She refers to my symptoms as seizures, and epilepsy is included in the conversations. Can I assume that I’m diagnosed as having epilepsy?

I’d like to ask you a question, please don’t feel like you have to answer.
How? How did you find the way? From what you’ve said, your road with epilepsy has been very long and difficult.
Yet. Here you are. Taking time for the newbie. Thank you. It means the world.
~Erica