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Searching For Diagnosis. CIDP? Please Help Me

Neuropathy | Last Active: Aug 21, 2023 | Replies (12)
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@slavichx

I have been to a neurologist that has taken nine months to figure out I have CIDP and now he is sending me to another neurologist that specializes in this field. However I cannot get in to see him for a month and a half and I’m really concerned because my symptoms are not getting better. I have health insurance through OptumCare Southwest medical and I don’t know what to do. I’m really perplexed because I’ve had several nerve studies and it the last neurologist took nine months to come up with this disease and now the new neurology specialist wants to give me another nerve study.

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Replies to "I have been to a neurologist that has taken nine months to figure out I have..."
Colleen Young, Connect Director | @colleenyoung | Oct 15, 2020

Hi @slavichx, I'm just seeing this post now. How are your symptoms these days?

Slavich, I would assume that your current neurologist will share your medical history with the new specialist, including results of diagnostic tests you did. You may wish to ask the new specialist why another nerve study is required. It is possible that she/he wants to compare the results of the tests over time.

You might also be interested in this discussion:
- Your Tips on How to Get Off to the Best Start with a New Specialist https://connect.mayoclinic.org/discussion/your-tips-on-how-to-get-off-to-the-best-start-with-a-new-specialist/

As you prepare for your upcoming appointment with the new neurology specialist, have you organized your questions into a list?

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Hank | @jesfactsmon | Oct 15, 2020

@slavichx
Like Colleen, I did not notice your post when you placed it here on 9/15. Sorry no one responded then, did not mean to ignore you certainly! Interestingly CIDP came up in two other discussions just today. One person with CIDP, @sparshall , said that it is very important to have the diagnosis and start treatment for it as soon as possible as waiting too long could lead to unfortunate developments such as potential paralysis. Not trying to alarm you, but you should make sure your doctors are moving things along toward treatment options in a timely manner. Hope to see you post here again. Best, Hank

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