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MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (48)
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MAC/bronchiectesis, diagnosed 2011. Did the 3 drugs routine for 18 months with no success (2015). Currently managing with Aerobika, 7% saline, reducing opps for silent reflux, and lots of aerobic exercise. Feel good, thank goodness! Visited Mayo Scottsdale early on for 2nd opinion, and now go to NJH Denver routinely. How 'bout you?
Replies to "MAC/bronchiectesis, diagnosed 2011. Did the 3 drugs routine for 18 months with no success (2015). Currently..."
Tell me more about lots of aerobic exercise. How do you manage to do it? Treadmill or outside walking or? Did you build up time slowly or? I do everything you’re doing. I know I need to do more aerobics.
Aerogirl, if this forum had eligibility requirements I’ll hazard a guess that you’d have’em nailed. Don
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Hi @aerogirl, I'll add my welcome. While you might be new to Mayo Clinic Connect, I see that you are not new to MAC and Bronchiectesis. This forum was started in 2011 and remains very active to today. You can see the origins of the group and meet most of the members in this discussion
– (MAC/MAI) MYCOBACTERIUM AVIUM COMPLEX PULMONARY DISEASE/BRONCHIECTASIS https://connect.mayoclinic.org/discussion/mycobacterium-avium-complex-pulmonary-disease-macmai/
As you browse the topics of the MAC group (https://connect.mayoclinic.org/group/mac-bronchiectasis/), I'm confident you'll see your experience with anitbiotics, aerobika, 7% saline, silent reflux, etc echoed by several members. What I know you'll find is a supportive and wel-informed group of people willing to share their experiences to learn, support and discover. Glad to add you to the group.