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Good evening @atchastain, welcome to our neuropathy group. Is the meeting to assess your medications with a neurologist? What treatments other than these medications have you tried? I have not been diagnosed with anything similar and on top of that, I just don't know what burning means. How would you describe it? Is it tingling sensations that are so intense that you feel pain all over your hands? If you hold the fingers in your hand tightly, does the "burning" go away? Does heat or cold make a difference?
You may want to make a list for the doctor of your symptoms and what you are doing to relieve them at this point. It would be helpful for your discussion to be able to take a written document with you that includes your symptoms, diagnosis, treatments, medications, and side effects if any. If you have a portal available at your clinic or hospital, you can just upload your information onto your record before your appointment.
One of the things I have noticed over the years is that even with medical cannabis our body becomes a bit too comfortable with a dosage and we have to assess and make choices all over again either to add more at each dose or more doses in a day or a new medication. Don't forget to take time in letting go of or reducing something like Gabapentin. I think you are already pretty maxed out with Gabapentin. 3600 mg is the highest dosage possible. I take 900 mg every night reduced from 1200 so that I could replace it with a dropper of medical cannabis.
Are you sleeping well? I guess I would question why you are taking so much gabapentin as well as one of the strongest pain opioid medication in a patch.... Buprenorphine. Do you put the patch over your hands? On top of the topical compound?
Well....that is certainly a lot of questions. However, on Connect we like to be thorough so we don't miss a significant issue. Without being pushy.....would you please let us know the outcome of your meeting with your clinician. I am putting you on my follow up list. Best wishes for a successful appointment.
Be safe and protected from inner and outer harm.
Chris
Replies to "Good evening @atchastain, welcome to our neuropathy group. Is the meeting to assess your medications with..."
@ Chris trout Wanted to let every one know I have a sinus infection, so won't be able to message anyone, unless I start to feel better.
Love and prayers to all lilypaws
Hello, I hope this helps, but I feel like I am being burned alive. I described it as stinging. And or, like a brutal sunburn that has burned off the top layer of my skin. At the same time I am numb all over and can be in a pool and not feel that I am wet. I can feel temperature and pressure but not wetness. I hope those descriptions help. There are mild pins and needles but mostly mine is stinging and burning. My feet and hands are like ice and knees burn especially badly so heat on hands and feet and Ice gels on knees. Hope that helps, Sunny flower
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@artscaping Chris, I agree with you about marijuana. Linda, my wife, usually tries to limit herself to using it twice per week. She knows from experience that if she uses it too often it will reduce it' effectiveness. Lately her pain has just been so bad and relentless she has used it several times within a week. The other day she said she had smoked two different times (medical MJ is illegal in Tennessee) in one evening after having already used it two or three times very recently. She said it did nothing and looked quite disconsolate. I feel so badly and so helpless when she has bouts lie this. Anyway, just wanted to tell you that I agree with overuse of MJ which seems to be true with many other things as well. Best, Hank