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Nerve biopsy test: Is it done by a neurologist or rheumatologist?
Neuropathy | Last Active: Dec 10, 2021 | Replies (222)Comment receiving replies
@sunnyflower, @jesfactsmon My husband's very words, "They have no idea...you seem normal to everyone else and they have no idea what really goes on." In other words, what he has to witness, deal with, endure is deceiving to others. The expression goes....you hurt the ones you love. Well, not intentionally of course but, the ones who are closest to you and live with you, share most in your misery, pain and commiseration. This never seemed quite right in my mind because they generally love you the most yet they get the shortest end of the stick. I suppose that is where vows come in. A sad situation overall and not one that any of us would ever choose. I try very hard to remember that my husband feels the most of my pain, he wants to fix me but cant, and that leaves him feeling frustrated, angry and burned out also. I do try to keep his feelings in perspective and show him love and affection as best I can. He deserves more than anyone else in my life.
Replies to "@sunnyflower, @jesfactsmon My husband's very words, "They have no idea...you seem normal to everyone else and..."
@rwinney I try not to dump on my wife, Marilyn. She made a negative remark about how I'm so focused on my pain, so a few years ago I made a promise to myself (never told her) not to say anything to her about my pain for one year. I kept the promise, and still haven't told her about it, and I don't think she noticed.
The last few nights I've been in tears - well, as close to tears as I get - with the pain level in my feet and ankles 9 or 10. I don't often say anything, but I think it would be hard to miss, with me trying to find a position that hurts less for a few minutes. Hard to do most of the time.
Depression can be hard to hide, but I'm pretty much unemotional, neither happy nor sad. That's pretty much been true all my life, and sometimes it's a good thing, sometimes not so good. I don't think anyone at church knows about my mental health except for two of the pastors. But then people have to wonder why I have a service dog. Sadie is always with me, including at church. Church is the only place that can legally refuse access to a service animal, and when I requested permission, the pastor didn't hesitate to allow her. That was a big factor in finding a church home. It told me a lot about the ministry ethics of the church.
Marilyn has her own pain issues, most recently bursitis in her hip. A cortisone shot a few weeks ago really helped. No cortisone shot for pn. Don't we wish. She understands pain, but I don't know if she really gets it all the time. I hate being a burden on her.
Today when we got home from church, I did yard work. I picked around 3 quarts of beans, some tomatoes, 6 cucumbers, a pattie pan squash, enough little potatoes for stir fry for supper and one tomato worm - nasty things. They've only been on one plant. I think I need to check out the plants more carefully when I buy them.
After I did the dishes, I headed for the recliner, and as soon as I sat, the pain shot up from 4 or 5 to 8. I wish I knew why sitting, lying down and standing still hurt so much more. I'm hoping for some relief from spinal stenosis surgery in 19 days. I'm having to hustle to get things in place before surgery. It would be nice if we don't have frost until the first of October.
Well, time for bed. At least taking my full dose of morphine at bedtime seems to help a little.
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@rwinney, @sunnyflower
It's not a picnic for either spouse. But you and Sunny and Linda, et.al. have it the roughest, no question. Me, your's and Sunny's husbands would agree with me I am sure of it. Hank