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Nerve biopsy test: Is it done by a neurologist or rheumatologist?
Neuropathy | Last Active: Dec 10, 2021 | Replies (222)Comment receiving replies
I get it. That can be the down side of wearing the smiling, "I'm fine" mask. Disability that's not visible, at least for me, is almost worse than using crutches. And neuropathy is one of the challenging ones. Not even the top neurospecialists can give us much positive help. Certainly no definitive cure. We can have all of the tests done and not be much closer to being pain free. Tests do help us understand to some extent what our bodies are doing. And I like knowing as much as I can.
Mental health unwellness can also be invisible, depending on the person and the illness. I was a master at wearing the mask. But that's a subject for a different forum. Our daughter understands completely, but our son seems blind to the pain my wife and I both live with.
I'm looking forward to my appointment with my neurologist next week, to learn the results of a couple of test retakes. As I said, I like knowing all I can. Maybe even a little OCD about it.
Jim
Replies to "@jesfactsmon @sunnyflower I get it. That can be the down side of wearing the smiling, "I'm..."
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@jimhd , I think that is the conundrum of having been a more or less happy, well adjusted person before neuropathy entered the scene. That is who Linda was. That is still who she is except now you she is in constant unrelenting pain. It doesn't change the essential person she was/is, the Linda that doesn't naturally want or like to inflict her own problems on others. It doesn't give her a payoff to do that. That is my experience. But it does make her pain invisible, except when she talks about it in conversation, which is not very often and only in passing. She usually does not verbally complain about it. I suppose it's a personality thing, for some it's therapeutic to verbalize their pain often, for others it's not. Best, Hank