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Nerve biopsy test: Is it done by a neurologist or rheumatologist?
Neuropathy | Last Active: Dec 10, 2021 | Replies (222)Comment receiving replies
Hi @sunnyflower, if you don't mind my asking, and not wanting to pry, but could you tell me what the 3 rare conditions you suffer from are besides autoimmune, neuropathy and fibro? Just curious. You sure have a load of grief piled on you. My compassion vibes get really tweaked whenever I hear you speak about what you face on a daily basis. With love, Hank
Replies to "Hi @sunnyflower, if you don't mind my asking, and not wanting to pry, but could you..."
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Sure. I don't think
1. Nutcrackers Esophagus, aka Jackhammer Esophagus is a motility disease diagnosed by an esophageal manometry, often confused as cardiac vs. GI. It presents as cardiac pain: severe sharp mid-sternum and INTENSE throbbing jaw Pn) from the esophageal muscles spasming. Tx is nitroglycerin SL. After the 3rd tab, waiting 5 minutes between each, if Pn persists then 911 call.). Tx also is an esophageal stretch under anesthesia. My 3rd is scheduled for this coming Wednesday. Ug. Not sure if it's auto Dz.
2nd. Minute Diffuse Meningotheliomatosis. I have innumerable little tumors in both lung Dx'd by 3 lung biopsies which also showed asthma and mild emphasema. No Tx now, just following with CT scans. I thought I read there have only been 25 people who have this. Don't think it is an autoimmune Dz.
3. I just learned I have a stenosed (greater than 50%) brachial artery diasnosed by neck/arm ultrasound. I will see vascular surgeon soon. Yikes, scary. This one may be part of my autoimmune Dz.
Sorry if any of this is a repeat. I thought I had talked about some of this somewhere else? I REALLY need to know if I can access my replies in a user-friendly way so that I won't be repeating myself. Oh dear. Thank you and take good care, Sunnyflower