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@maryflorida

Barry, but what can be done for neuropathy plus fibromyalgia? My PCP said all that can be done is pain control.. ??

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Replies to "Barry, but what can be done for neuropathy plus fibromyalgia? My PCP said all that can..."

@maryflorida Hi there, my wife was diagnosed with fibromyalgia around 1990. The neuropathy came in 2014. The way the fibro manifested was that when she overdid physically her muscles would become very painful. She would move around the house like a 95 year old person is what we always said. You know, like she could only move very slowly and stiffly and painfully. And that would last maybe a day if she stopped moving. So she learned to cool it on the overdoing. Not easy for her, she has always been a chronic overdoer. But through the years she has learned what the consequences are to overdoing.

As I said, she also has neuropathy, burning feet and sometimes calves from chemo. I would say currently about 70% or more of her pain is neuropathy and 30% is fibro, migraines and tinnitus. Actually the fibro seems like the least of her pain as long as, as I said before, she doesn't overdo physically. She has never taken pain killers, except marijuana occasionally. She is allergic to all OTC pain killers, i.e. no aspirin, advil, tylenol, etc. So my point is, she lives with the peripheral neuropathy pain, migraines and tinnitus. For the fibro she pretty much tries her best to "do" but not "overdo".

May I ask you, how does your fibro manifest and when? Can you describe how a flareup occurs in your case? How long do they last and how does the fibro pain compare to the PN pain?

Hank