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Stomach pain and throwing up repeatedly
My 11 year old son has that had stomach pains and has been throwing up for a month and the doctors just want to keep giving him meds they've done CT scans x-rays MRIs and still no idea what is going on he throws at 4 to 6 times a day he hasn't lost weight and has no fever and I'm very frustrated that he has missed almost a month of school because of this cuz he can hardly move cuz it stomach hurts
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Hi @trip17, and thank you @astaingegerdm for bringing that up. If you would like to make an appointment at Mayo Clinic Florida I have included a link here: http://mayocl.in/1mtmR63 You will first speak with a coordinator that will establish you as a patient with a clinic number and run your insurance to determine if you are in network and then they will transfer you to an agent who will ask symptom related questions to determine which department is appropriate for you to start in.
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1 ReactionLook into Mast Cell Activation Syndrome. A mediator release test MRT will indicate which foods you are "sensitive" to, not allergic to. It is an expensive blood test through Oxford Clinical Laboratory in Palm Beach, Florida. Watch a video done by Ilana Jacqueline on Mast Cell Activation. This was the answer for my grandson who suffered for 2+ years with nausea, vomiting and severe abdominal pain every morning. Had every test in the book, tried many different medications, to no avail. This test found he was sensitive to many different foods and chemicals found in meds and food, One of the main ones was aspartame, the artificial sweetener found in diet beverages and foods. He is diabetic and had been eating/drinking diet stuff since he was a little kid (he is now 20). So, after only 2 days of eliminating aspartame, his stomach issues disappeared. We also eliminated the other ones, like corn, spinach, bananas, oregano, MSG, onions. He is a totally different person now that he feels pretty normal. Mast cells are supposed to be good guys, but sometimes they run amuk. Hope this helps.
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1 ReactionThanks. Have already started the process. Having a Splanchnic Nerve block injection this week or next to help relieve the pain.
@trip17 - It’s good news that you will get help with the pain and be able to function. Good luck!
If I was seeking treatment at Mayo,where I am an established patient, Is go to Rochester. Easy flight from Texas
My grandson had a diagnostic splanchnic nerve block, but the the relief from pain only lasted 2 weeks. He then had a radiofrequency ablation, which also only relieved pain for less than a month. Please look into Mast Cell Activation Syndrome. It was the answer for my grandson.
Thank you! For some reason, I've been feeling a little better lately. I have done a few things like acupuncture, special drinks, chiropractor. Still hurts but for the first time in months I've actually had long periods during the day where I feel "normal." I had no idea how sick I was until I started feeling a little better. The Dr. said the shot should work a month to 3 months, which is all I need right now. After that I can go to Mayo and let them figure it out. I'll check into MCAS. Glad your grandson is feeling better.
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1 ReactionI will keep you in my prayers
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2 ReactionsI'm going to jump in on this thread. My gallbladder was removed in 2014 after I had been having right upper ab pain for several years. All tests were normal except for a slightly abnormal gallbladder ejection fraction. The pain continued even after the GB was out. Started seeing a pain specialist after all GI testing came back normal. Have been on Tramadol and Gabapentin for pain which is in my right upper abdominal area. Surgeon thought it could be scar tissue from the GB surgery so he went in and took down scar tissue. Still no relief. This pain has totally controlled what I do. Some days are worse than others. It's been close to 10 years since I started my journey to find out what was causing this. I live in Northern MN and visited the University of MN to see Dr. Freeman the Sphincter of Oddi expert. He ruled out SOD. So it was back to the pain specialist. At one visit he suggested I see an interventional pain provider at a local pain center where I had nerve blocks. These did not relieve the pain. It is an aching sometimes sharp pain that can come on if I overly exert myself, other times it comes on for no reason and can last all day. The pain meds take the edge off. I even went as far as seeing a psychologist to learn mindfulness and how to control the pain by creating new pathways to the brain center that controls pain signals. It is very relaxing as I do carry a lot of stress in that area when the pain is bad.
The pain doc then said let's do a trigger point injection using bubivacaine and a small amount of Kenalog. I was able to put my finger on the exact spot where the pain was in the right upper abdomen right under my ribcage near the midline. He then had me do the Carnetts test by lifting my legs to see if the pain stayed the same or changed. It didn't change. He said he believed I had ACNES or anterior cutaneous nerve entrapment syndrome. The trigger point injection helped relieve the pain and though it only lasts a couple weeks it was such a relief. I do go back every few months for an injection. While it's not a cure it does help. We talked to the surgeon and asked about a neurectomy to cut the nerve causing the pain, however he wouldn't perform one in that area as you can lose all muscle tone in that area. So after all these years I finally have an answer as to what is causing the pain and while I'm learning to live with it and control it, it's still something I won't give up on. I do a lot of reading and research to see if anything new is being found through case studies which there is but unfortunately it's happening outside the US.
Through all of this I've had a good support group in my family and friends and most importantly with my Lord and Savior, Jesus Christ. When others don't understand and get frustrated right along with me, I know that He knows and is always in control no matter what.
I wish you well in your journey for an answer. Don't give up. It took me years and many unneeded tests and visits as ACNES is so often overlooked as a cause of unexplained abdominal pain. So your answer is coming. I believe that. Take care.
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1 ReactionI went through a year of nausea and diarrhea til I found that my memory med (Donepezil generic) and the patch were causing my condition to get worse. I'm now on Prevagen and memory and other factors have all settled down. Just a share.