Hello Darren @darrenm, I would like to add my welcome to Connect along with @jesfactsmon @lorirenee1 @user_che214927 @rwinney and other members. Here are some other discussion on Connect you may find helpful...

Electrical shocks throughout my body: https://connect.mayoclinic.org/discussion/electrical-shocks-throughout-my-body/
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Ideas for pain relief from Small Fiber Neuropathy (SFN): https://connect.mayoclinic.org/discussion/ideas-for-pain-from-small-fiber-neuropathy/
Neuropathy and Brain Neuroplasticity: https://connect.mayoclinic.org/discussion/barry-sheales-australia/

As @jesfactsmon mentioned each of us are different. I noticed the numbness starting in my toes in my late 40s and waited 20+ years before seeking a diagnosis. I too was pondering is it worth it after being told early on by my doctors they can do testing to prove it's nerve damage but when I asked if they determine it's nerve damage, what can be done. When told not much, I shrugged it off for over 20 years until the numbness was just below my knees and I just needed to know the cause even if there was no treatment for the numbness. In retrospect, I'm happy I had the tests and met with a neurologist even though I had to do my own research to find something that will help my symptoms. That search led me to Connect and this great support group of other patients also looking for answers. Sharing our experiences with each other has been helpful for me and hopefully will help you find something that works for you.

Darren, you mentioned seeing doctors and a neurologist but they only assumed small fiber neuropathy. Did they do a nerve conduction study or a skin punch biopsy?