@heal33
I’m not a big fan of Epilepsy surgery although it has helped many patients especially with Temporal Lobe Epilepsy. It has also made some worse. Not to mention complications from Inter-cranial EEG to pinpoint the seizure focus for surgery, including death. Both the RNS & VNS usually perform better over time. The RNS Is a learning device although that’s not to say that it hasn’t helped people in the first year. Like I always say epilepsy is a very personal condition. Just because something works for one person with the same diagnosis doesn’t mean it’s going to work for someone else. I believe epilepsy surgery is a risky gamble it’s one I was unwilling to take. I was told my epilepsy was intractable and my seizures would last till I died. They were wrong. My seizures stopped after 44 years. How frequent are your seizures? Which medications have you tried?
When talking to medical experts you’ll probably hear more of the potential benefits than you will of everything that could go wrong. Just make sure you’re prepared for the good as well as the bad. I am probably overly pessimistic but I have heard from so many family member so many parents I suppose it’s made me more pessimistic than optimistic.
Just be sure to weigh all the facts before proceeding.
Take care and I wish you well,
Jake