Hi @fde11
No, my wife's neuropathy symptoms have so far remained mostly contained in her lower legs. In fact 95% just feet and ankles. There have been rare occasions when she felt it in her hands but only temporarily. A few times it has crawled up her legs to almost her knees. But we know there is no way to know what will happen next, if anything. This is the craziest ailment. Nerve issues are mostly unpredictable. So regardless of how it manifests in one person, the next person's might manifest totally differently.

The nerve test will be a good place to go next. I am learning there are some typical ones people get, such as a nerve conduction test and a skin punch biopsy. There are others, but your symptoms sounds like they may be indicating SFPN (small fiber peripheral neuropathy). The best thing for you right now, if you haven't been already, is to be Googling stuff like crazy. All of the basics about this nerve disorder are there.

Questions you don't get answered somewhere else (like by your doctor or elsewhere on the internet) you can bring here to Mayo Connect. I'm no expert, and most here are not, though it varies from person to person. Lot's of folks here having been living with PN or SFPN or some other form of neuropathy for a LONG TIME. That's the beauty of Mayo Connect. A lot of people are listening to (reading) what you have to say and will respond when they have something pertinent to tell you. That why it's good to try to do more than just graze over this website. OK, enough about that.

Let me say a couple of things that I have observed in the 6 years I have been aware of this illness. One is that stress seems to be a key instigator in making things worse with PN. So try to do whatever you can to reduce your stress level. The other is that (again just my opinion) it seems like many people who have this have the type of personality that could described by some or all of the following words: "overachiever" "perfectionist" "controlling" "hyper" "OCD". These traits stress out the nerves. Another related illness people seem to get is fibromyalgia another nervous disorder which you might want to search for to see if that sounds like you as well.

Anyway, just trying to give you a few ideas to mull over as you explore this further. Please pipe up any time with any specific question or worries you have that are not being addressed for you elsewhere. I am sorry you are developing these symptoms, hopefully you will find out more as you go forward. My best to you, Hank