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anyone feel more burning/numbness when sitting

Neuropathy | Last Active: 4 days ago | Replies (178)

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@sunnyflower

Thanks so much John. I just don't know where I would start there. I have good specialists here who went to really good schools but wonder if bc I'm and some of them are in an HMO, if I 'm receiving everything I could be, especially in the way of diagnostics. They are very generous with the baselines but I know I could probably have some more specialized things like labs. I have tons of imaging diagnostics and blood work etc., but most of the labs are Kaiser Permanente's and there are a lot of disqualifiers on the results page about how they test. I just got a path report from some stomach and esophageal Bx's that had quite a few disqualifiers on the prep and testing such as, "not FDA approved" but good enough (not verbatim). I read a book called, "Believe Me" by Yolanda Hadid Foster who was very sick for a very long time and went around the world to renowned Specialists to try different treatments. She spent a fortune and ultimately her illness and all surrounding it, led to divorce from David Foster the very popular music producer. She kept testing negative for Lyme disease in America, but positive in the European blood test. In the book she describes the differences. So this is what gets me to wonder about whether or not an HMO will go the extra mile with Diagnostics. I'm very grateful for the care I have and think it is very good however I know it can be taken to a deeper level. I just don't know if Mayo Clinic does that? I wonder if any of you out there know or have good reference to what your doctors or insurance company would pay for, especially if it's an HMO, compared to the testing that Mayo Clinic doctors will do.

Sorry for the novel and please know how grateful I am for your great help!

I pray that you are doing much better than tolerable today and always. Warmest regards, Sunny (too lazy to type "flower" anymore.

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Replies to "Thanks so much John. I just don't know where I would start there. I have good..."

Hi Sunny @sunnyflower, I wished I had some answers for you. It's difficult when specialists and doctors you've seen are not able to provide a diagnosis and treatment that helps. I think that is the reason why a lot of us are learning as much as we can to become better advocates for our own health. I think it's great when we have doctors that will listen and answer questions that we have on getting a diagnosis and treatment. If a doctor is unable to help in that respect, they should be open to offering a referral or helping you get another opinion. I had the opportunity a year ago to listen to Dr Victor Montori who has some really good ideas for how to talk to Doctors and healthcare professionals - https://patientrevolution.org/visit-tools.

It might be worth discussing your symptoms and lack of diagnosis and/or treatment that is helping you with your doctor and seeing if they will give you a referral. Mayo Clinic has a billing and insurance number you can call to get your questions answered -- https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance/medicare/more-on-medicare

I think the reason why Mayo Clinic is successful where other healthcare systems may fail is due to Mayo Clinic's multidisciplinary teamwork and patient-centered culture with all of the specialty areas working together with the patient in mind.

Hope you are having a good day.