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anyone feel more burning/numbness when sitting

Neuropathy | Last Active: 4 days ago | Replies (178)

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@rwinney

Hello @sunnyflower. John has provided the starting point and info for you. I recommend having your most hands on , knowledgable Drs who are very involved in your health be the ones to refer you. My experience being referred by my Drs. was that I had been diagnosed already with things Mayo felt I could be treated for by my local Drs. Possibly I was no great mystery and apparently they felt they could not help. Or were too busy to take me on. Perhaps your multiple diagnosis and unique diseases will draw attention for treatment. You've got nothing to lose! Go for it!!
Many well wishes to you,
Rachel

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Replies to "Hello @sunnyflower. John has provided the starting point and info for you. I recommend having your..."

PS: Check out your insurance first to be sure you can go out of network. Unless however you live near one of 3 Mayo Clinics

Hi Rachel, my fear is, that one or more of my specialist would wonder why I want to go to Mayo Clinic. I have my positive Diagnostics and a name for most if not all of the diseases and conditions I have, so even though three of them are rare, and my specialist tell me I'm a complicated patient, I think that they would think there's nothing more any other doctor could do. I hope that makes sense to you. I just don't want to compromise the good relationship I have with them and risk them feeling that I don't think they're care is good enough. After working in healthcare for so many years, I do understand that really good doctors do not become offended if patients want a second or third opinion and in fact I have that going on right now with two different neurosurgeons we are Consulting with over my severe canal stenosis surgery. They keep telling me I'm very high-risk for surgery and I have such a poor history of unmanageable post-op pain and healing that I just don't want to face it until I absolutely have to have the decompression surgery. It's just never simple is it?

Thank you very much for your input, it is very much appreciated! Take care, Sunny

Thank you Rachel! Good advice and support! I appreciate you very much! Peace and comfort and ZERO pain is my prayer for you! Wow, that's a lot of exclamations, only every sentence! 🤔