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anyone feel more burning/numbness when sitting
Neuropathy | Last Active: 4 days ago | Replies (178)Comment receiving replies
@brayimee Ok. It ain't easy, I know that. I feel your despair. You can feel defeated, but you can not be defeated! Pick up the phone and call Mayo Clinic. Get the ball rolling, watch their videos on pain by Dr. Sletten. I can tell you from my experience, you need appropriate out of network insurance to get coverage at Mayo. I was denied once but, I was already diagnosed, you aren't. A Dr. or multiple Dr. referrals are best for your acceptance. You can also self refer and apply online today. Mayo was wonderful at calling back promptly. I was eventually accepted to their pain rehab program and in order to not pay 50K out of pocket, switched my insurance the first of the year to be covered. This all takes time. Begin soon if you are serious.
My best wishes and encouragement,
Rachel
Replies to "@brayimee Ok. It ain't easy, I know that. I feel your despair. You can feel defeated,..."
Hi Rachel, do you have any idea at all about how I would apply to be seen at Mayo since I have so many specialists now and they all say that I am a complicated patient? I wouldn't know where to begin! I think neuro and rheum may be the most important?? I have thought about it so often over the years and family members have tried to encourage me to go over the years but I don't know what they would do with me either! I would appreciate your thoughts on this very much. Take care, Sunny. 😊
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@rwinney
I love all the support I have here. My plan now is to try this incredibly low dose elevil, stay on PT/chiropractor and head to WV to check my ribs with a reputable thoracic surgeon. If this is a dead end, I lost a few hundred in travels and gained a few good days with my good friend who offered to drive. I will keep on my pain log, write my ideas for diagnosis and apply to Mayo or UofM. My primary already said he would refer my anywhere. I think he is stumped, but wants me to get the help so badly.
Aimee xx