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anyone feel more burning/numbness when sitting
Neuropathy | Last Active: 4 days ago | Replies (178)Comment receiving replies
@jesfactsmon
I am trying to stay strong, but my PMR doctor flushed my thought to drive to WV to see about slipping rib, he flushed my idea in hemangiomas, and when I said I keep getting nerve pain in my right glute, he gave me a psychiatrist referral. 🙁 My cardiologists flushed my idea that I constantly feel my abdominal aorta and I wondered if it was vascular and told me to try the antidepressants. When I told my GI I was have bowel issues, he gave me a new antidepressant and set me up with a GI psychologist.
I feel defeated. I feel that my health care system is letting me down. I'll try the antidepressant fir a few weeks so I can say, this isn't psychosomatic. And you know, if it is, I will fully admit I was wrong.
Aimee 🙁 xx
Replies to "@jesfactsmon I am trying to stay strong, but my PMR doctor flushed my thought to drive..."
@brayimee Hi, Aimee, don't allow any doc to tell you all of your health issues are "In your head." That is utter nonsense, and it defeats you. As everyone as said here, it is time for a new course of action. You hold your head high, and go to a new doc, Mayo clinic, probably. You are too sick not to. There are good doctors out there. They do exist. Keep searching for them. Love, Lori Renee
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@brayimee Hi Aimee, I was wondering where things were at for you since we last communicated. It's obvious your doctors are treating you as a "headcase" i.e. your issues are emotion based and not real. They are prescribing antidepressants and that is it. Assuming what you are going through is VERY real and you know that, then they are not serving you at all.
My question to you is, are you putting any energy toward the Mayo Clinic idea? If you just start by doing SOMETHING in that direction it will get the momentum started. You have described in vivid detail what you are going through with all of your symptoms. If you can just put a little tiny but of energy into heading in that direction (Mayo) and then keep that ball rolling a little at a time while also dealing with everything else, you might be surprised where that takes you. I don't know what else to tell you except put it into your mind what you want to happen. Start to visualize that outcome and keep putting your mind towards it.
You have something that is beyond the experience and scope of the doctors you are seeing. To the degree they can still help you, like your chiropractor for example and what he does for you, keep seeing them, but you need to start yourself heading in a new direction. Have you continued getting yourself organized, by putting all of your documentation into a folder as you had mentioned, and are you starting to keep a journal of your daily experiences and your symptoms? You should start (or continue) this practice as it can be helpful, both to you and any future practitioners who tries to help you. You need to stay firmly in control of your own case and what direction you are heading in.
By the way, have you watched that 2 hour PBS documentary about the Mayo Clinic that I sent you the link to? I am not going to knock any other institution you may be considering, but Mayo is like no other medical center in the world, and if anybody can help you it's them. @johnbishop sent you some great links to their sites. That is the best I can give you by way of advice at this point. Keep me and everyone else here posted on where you are at Aimee. You know my heart is with you.
Best, Hank