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anyone feel more burning/numbness when sitting
Neuropathy | Last Active: Nov 16, 2020 | Replies (177)Comment receiving replies
@brayimee I have been reading through all of the posts you have written the last week or so. You keep saying that you think the 2 hemangiomas T1 & T11 might be related to your problems. I did some reading on hemangiomas. Most of them, like over 98-99% of them, are asymptomatic. But a very few of them can be aggressive. From what I am reading it sure sounds to me like these hemangiomas could very likely be your main problem and the root of all of your issues, just like you have been saying. Your doctors have blown you off about this because they think your hemangiomas are benign. They might be wrong. Take a look at what it says here:
Among symptomatic hemangiomas, the most common symptom is pain at the tumor site, usually in the back. If the tumor expands beyond the bony boundaries or causes collapse of a vertebra it will create pressure on the surrounding nerves or spinal cord. This can lead to pain that radiates to the arms or legs, weakness, numbness, or clumsiness of the arms or legs, or compromised bowel and/or bladder control. (from https://www.columbiaspine.org/condition/hemangioma/ )
And this:
Symptomatic vertebral hemangiomas are rare but should be considered as a differential diagnosis. They can present with severe neurological symptoms. When managed appropriately, patients regain full motor and sensory function. Decompression resulted in quick relief of symptoms, which was followed by an extensive rehabilitation program.
(from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5088736/ )
Which means this can be cured!
I think your main problem right now is you are seeing the wrong doctors. I now think that your hemangiomas need to be ruled out as the problem first. Especially if they have not even considered it to this point. Seems very odd they would not have picked up on this.
Hank
Replies to "@brayimee I have been reading through all of the posts you have written the last week..."
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@jesfactsmon I do think they should be considered, however I'm so lost as to what needs to be addressed with myself, doctors make me feel very defeated and that this is caused from anxiety, but pain like this... Is not anxiety, not voiding properly for 5 months, is not anxiety, having quiet bowels for 5 months, is not anxiety, all this left side pain, is not anxiety You get what I mean haha!!
That being said, one of the beginning issues I had, 2nd visit I went in for, was low left rib pain, upper abdominal pain and it radiated to the back. I'm guessing in the area of T9-T11 (T11 hemangioma). I had asked my physician about slipping rib syndrome "SRS" because the pain was burning in my ribs and that pain held for months until PT. It started to get a lot better with her help although, I wasn't diagnoses by anyone to have actually having it. So I rulled it out until 3 days ago. I'm not sure what I have done, but my low, left ribs are burning and I can feel a rib under another. I'm wondering if my rib misalignment/rib flare (addressed by my PT) is tugging on my spine and all this urinary, bowel and nerve pain is from the tugging and the muscles that have swelled along the left side. Maybe this is causing a lot of misfiring nerves?? I feel this is another area to address, but unfortunately, there are only a few thoracic surgeons familiar with it and only a handful of doctors/radiologists know how to test for it, but I can tell you.. Whatever has happened has had me in tears multiple times today and in bed.
So 2 things I suppose that can cause nerve pain and radiating issues. Hemangiomas and Slipped Ribs SRS, but I'm stumped about the SVTs and internal vibrations, unless the internal vibration is the SVT?
This pain has caused anxiety/depression, anyone in this state and no answers would develop this at some point, so I don't doubt that some of my symptoms could be from these, but the pain and system interruptions are real. This is way over sharing, but I'd have to tell doctors. Today I urinated so much in 2 trips, I had to take pain medication because my left abdomen and bladder hurt so bad. Something isn't working properly and my tests have been good. I'm just stumped, but could nerves be causing problems?
I have good news, and bad. My doctor said he'd refer me to Mayo or UofM (he prefers Mayo), but I'm not rich by any means and we still have 3 children at home and 1 in college. I'd have to check with insurance and even so I have to figure out how to pay for it. I know for certain I would want the hemangiomas addressed as well as SRS as a possibility. I'm not sure what else this could be at this point, other than nerves misfiring from something.
I wish I could give you a hug x, you have been more attentive than my specialists 🙂 and I will never be able to thank you enough.
I attached a chiropractor Xray so you can see how misaligned I am in the thoracic, lumbar region. My left is being so compromised, but why?
Aimee xx