@rwinney I have had standard blood tests. I would have to go back and look if they checked B12. My neurologist said, I'm stumped lets try brain MRI and I had to check the results, He didn't even message me or call about it. At the end of my appt. he said see you in 3 months. No other tests have been ordered by anyone else. I don't even know what to ask for, who to go to... This is why I feel so very defeated. I even said to one doctor, I can't do this anymore it's so painful when I get thee"episodes" then I ache all day. He said go to the ER and let them do another CT. I don't think they understand that I think it is nervous system, vascular, or my spine somewhere. I don't know. I just don't know what to do. As I type this, I am in tears, I just feel so lost.
I did wear a heart monitor for 2 weeks and recorded SVTs. the cardiologist said that sometimes as we get older there is no explanation for why we have these things. But these were sudden for me. I don't ever recall my heart doing this.
I'm noticing that I am having several of the episodes I mentioned in the anxiety post to you while I type this. I am looking down at my computer. I am trying to see if these "episodes" are more frequent with my head tilted forward. I keep feeling a pop in the back of my neck and I wonder sometimes if I have cervical instability? Maybe a lot of nerves are being pinched? My cervical spine is the only area not scanned. I am going to start recording if these "episodes" happen in different positions.
I know I should try the cymbalta.. I'm just so scared I won't be able to function for weeks until I am use to it and my kids start home school in the next 2 weeks.
I wish I could give this community a hug 🙂 All of your support means so much to me. Evan my closest friends have not been this supportive. They just don't understand how debilitating this has been for me. Like I said, going from Incredibly active to pushing though a walk to keep my strength up has been devastating. I feel like a broken record when I say I am so lost, but those who know me, who truly know me, know I don't stop, I am the mom that drove her kids to school with a migraine and would stop to vomit on the side of the road and keep driving, but this.. what ever this is.. Has stopped me! I'm desperate at this point ya know!?
Aimee xx