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Discussionanyone feel more burning/numbness when sitting
Neuropathy | Last Active: Dec 12, 2024 | Replies (178)Comment receiving replies
Replies to "Thank you for your reply :) x I feel defeated. One moment things are tolerable and..."
@brayimee Hello Aimee. I want to share with you that I also used to cry ALL the time when I didnt know what was wrong. For me it took a while of trouble shooting, wrong directions and head scratching. It is torture to ones soul. I understand and was where you are now. My husband sat beside me, one of those horrible painful days, and held me as I sobbed. This went on for months before he finally looked at me and said, "you need some help". Mentally speaking he meant. Me, the tough one, the one who held it all together for everyone, was failing to hold it together for myself. Never had I been faced with such defeat, frustration, fear and denial. I did 2 things for myself to help get through those difficult times. I began taking Cymbalta an antidepressant which is also used off label for nerve pain. I had refused it the year prior because I didnt believe in antidepressants. The next thing I did was seek help from a chronic pain psychologist. Again, something I never believed in, for myself, because I was always strong enough to handle what came my way. However, when we are faced with uncharted physical pain along side a full load of family responsibilities, a career, an active lifestyle and our lives come to a screeching halt...you'd best believe there will be denial, panic, frustration and unacceptance. The point is to please recognize that you may need help in the moment, be gentle on yourself and know that you deserve comfort. Perhaps pain medication, counseling, antidepressant. I tell you this because I did eventually get diagnosed and you will too. I was later able to get off the antidepressant. There may be mitigating factors for you. Maybe you haven't found the right Dr yet, the right team...it takes time. I firmly believe you are on the right path and will get to the bottom of it all. God, you remind me a lot of myself! Grass doesn't grow under feet like ours because we dont stand still long enough to let it. It is most hard to be stopped in your tracks and wake up one morning a changed person. My heart goes out to you and I wanted to remind you that you are not alone.
Well wishes for a peaceful day and evening.
Rachel
@brayimee Aimee, all of these symptoms hit you at once basically. So there is one unifying cause I am sure. It could be Guillain Barre, it could be something else. It sounds like you are at the point of desperation and I do not blame you for feeling that way. You are right, you are depressed and anxiety ridden for good reason, who wouldn't be?!!! I think if I were you I would contact Mayo and see what they say. You need a highly knowledgeable team working with you to figure this out. You need to understand what it is you are dealing with so you can stabilize at some kind of status quo, however good or bad it may be. Your husband and kids obviously love you very much and I am sure they want you to do whatever is the best option for you and them. Only you can decide what is best but from the limited information I have gleaned from you so far I believe it's time to call out the troops! I mean the Big Guns, aka the Mayo Clinic. My love and heart to you my dear, Hank