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anyone feel more burning/numbness when sitting

Neuropathy | Last Active: Nov 16, 2020 | Replies (177)

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@fredjan2016

@brayimee Sounds like things aren't going well for you and I'm sad to hear about your frustration. In my case I was diagnosed with small fiber peripheral neuropathy after my neurologist performed a biopsy. My uncle, sister and brother were all diagnosed with the same thing. The neurologist started me on 100mg of Gabapentin three times and day and after a few months got to 900mg three times a day. It didn't work for me, but it works great for my brother. He started at 100mg and his neurologist has increased it a few times. So your neurologist is the one to increase it. You might want to call and let his nurse know the pain gets to a level 7 (out of 10) or higher and ask what you should do about it. They might raise it over the phone or have you come in sooner. I found that if I tell them what's wrong and ask what I should do, they were more likely to increase my medications as apposed to me saying I think we should increase the medications. Also, don't give up hope. There are other prescriptions that they can prescribe for peripheral neuropathy. They doctor can also prescribe pain medication. My neurologist sent me to a pain management doctor. I no longer see a neurologist. They said there is nothing they can do for me.

Most of my doctors don't like hearing about what I find out on the internet, so I don't tell them directly that is where I heard about something. Last couple of times I just asked them if such-in-such would help and they prescribed it to me, but it didn't help. The only thing that has helped me is a peripheral nerve stimulator installed in both legs and pain medications.

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Replies to "@brayimee Sounds like things aren't going well for you and I'm sad to hear about your..."

Thank you for your reply 🙂 x
I feel defeated. One moment things are tolerable and the next the pain in my left side has my pulse high and I just keep trying to push on for my kids. But it has changed me and my way of living. No answers makes it so hard. I cry a lot and wonder what happened to me? It was honestly a wake up in pain and never been the same. I don't know what to take for pain? I want to be gentle on my tummy (GI said I had inactive gastritis several months ago when testing started) so I'm not sure if these meds will flare it up?
I'm just lost and I hate saying that because I've always been strong, but this... this has stopped me dead in my tracks.
Aimee