Hi @brayimee per our talk yesterday (on the other discussion) about the possibility that what you are dealing with is actually Guillain-Barre' syndrome, I would like to hear back from you after your doctor checks this out (please use my username @jesfactsmon so I will receive a notice) as I am very curious. Your symptoms really seem to coincide with GB. I also think it would be good for you to stay in touch with the Mayo Connect forum whether you use it regularly or just occasionally to discuss what you are going through, you'd be amazed at how helpful some feedback can be for you while you are going through all of this. Your problem has struck a chord with everyone here and I hope you can get to the bottom of it. All my best, Hank

@brayimee So sorry you feel so sick. Life is utterly fragile, and sudden illness proves it. You definitely need a diagnosis. I only have Neuropathy and have no clue how to put your symptoms together, but of course, they must be investigated. Best wishes and health to you. Lori Renee

@brayimee Sounds like things aren't going well for you and I'm sad to hear about your frustration. In my case I was diagnosed with small fiber peripheral neuropathy after my neurologist performed a biopsy. My uncle, sister and brother were all diagnosed with the same thing. The neurologist started me on 100mg of Gabapentin three times and day and after a few months got to 900mg three times a day. It didn't work for me, but it works great for my brother. He started at 100mg and his neurologist has increased it a few times. So your neurologist is the one to increase it. You might want to call and let his nurse know the pain gets to a level 7 (out of 10) or higher and ask what you should do about it. They might raise it over the phone or have you come in sooner. I found that if I tell them what's wrong and ask what I should do, they were more likely to increase my medications as apposed to me saying I think we should increase the medications. Also, don't give up hope. There are other prescriptions that they can prescribe for peripheral neuropathy. They doctor can also prescribe pain medication. My neurologist sent me to a pain management doctor. I no longer see a neurologist. They said there is nothing they can do for me.

Most of my doctors don't like hearing about what I find out on the internet, so I don't tell them directly that is where I heard about something. Last couple of times I just asked them if such-in-such would help and they prescribed it to me, but it didn't help. The only thing that has helped me is a peripheral nerve stimulator installed in both legs and pain medications.