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anyone feel more burning/numbness when sitting
Neuropathy | Last Active: Nov 16, 2020 | Replies (177)Comment receiving replies
I was in a similar boat after being diagnosed with SFN. My Dr. labeled me with polyneuropathy after biopsy and sent me on my way. I'd go back again and again telling him my legs were dying, my pain was increasing throughout my body and I would be the one to ask him about supplements, Lyrica, etc... I found Mayo Connect in May 2019 as I was desperate to learn more than Google was offering. Needed to connect and learn from personal experiences. Being involved here has taught me so much from recommended books/videos, myofascial release therapy, supplement Protocol, medical marijuana and a plethora of other holistic approaches. Not to mention the support and care I've received that blew any shrink out of the water and saved money! But, that's my personal opinion and experience.
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Sometimes I think it is best to ask about personal experiences. What works for some might not work for others or what works for someone might also work for you. I have my own care plan lined up and if it's a fail, I will be contacting Mayo. I personally feel doctors are leaving bits and pieces out or are not looking at all my tests these last 5 months. I have some theories about my issues, but my doctors don't want to hear them. They dismiss it when I bring it up, so how can I get help from them if they do not listen? What is happening to me is NOT normal and if they look back, they will see that I was never in the office asking for help until now. So frustrating.
I love myofascial release and I too use marijuana at times. It helps!