@ipate
I wonder if you’re having multiple issues?
There is a type of Epilepsy called Abdominal Epilepsy but it is very rare but of course that doesn’t mean you can’t have it. Do you have muscle jerks if so what time of the day do you have him also you mentioned fainting I believe is it actually syncope or is it an actual convulsive seizure Were you fall to the ground and begin to shake and jerk and are confused to afterwords and probably sleep. Also has anyone witnessed these attacks? When your neurologist put you on anticonvulsant medication I believe you said you were better but then they took you off and your problems increased. Can you tell us EXACTLY what symptoms became worse?
When someone is diagnosed with JME (juvenile myoclonic Epilepsy) The EEG tracing is occasionally normal. Just because a person has a normal EEG does not mean they don’t have JME Juvenile Myoclonic epilepsy or any other form of epilepsy. Have you figured out what any of your triggers may be? Do you know the reason your doctor took you off the medication? Was it because your EEG was normal? If that was the reason why my personal opinion is that he was very irresponsible in doing that especially since your condition worsened.
Have you been to more than one Neurologist? I believe seeing Endrochrononologist is an excellent idea.
Also since you have already had a regular EEG it might be a good idea to suggest to your doctor bet you have a sleep deprived EEG or an ambulatory EEG where are you are tested for multiple days so they can check when you’re awake and asleep. Also you can suggest being admitted to and epilepsy center. If you were near Rochester Minnesota Arizona or Florida they have excellent facilities to be diagnosed.
I wish you well and please keep us advised,
Jake