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@lifetimepain

Hello, and thank you for your help in steering me to the proper group! I had the surgery on October 12th. My implant is from Nevro. The trial period went very very well. I may have actually hit 80% reduction in pain. Then Corona virus happened and I had to delay for about 6 months. The procedure went very well, other than we discovered that my skin reacted horribly to both the staples and surgical adhesive. Was given antibiotics and that was that.

The leads in my spine were inserted in a completely different location than where the trial was, so we're sort of starting over. I have no relief yet. My remote has settings - A, 1 thru 7, B, 1 thru 7 and C, 1 thru 7. I just learned that the higher the setting does NOT mean the stronger amount of pain relief. For instance, program A may have been a projection of 180 degrees, program B is something different. The trial period device sent the signal in a 360 degree pattern, which apparently isn't an option for the permanent device.

*Back in 1982 I had a retail job wherein I was standing all day and was when I realized my back was screaming. Had xrays in Ft. Laud., FL and found spondylolisthesis in 2 locations, mild scoliosis, and a bit of osteoporosis. 2 Harrington rods were inserted and I was strapped to a Stryker frame for 6 months. No pain relief, they were trying to save use of my legs. Skip forward to 1993, saw new docs in Idaho Falls, ID and found one rod had broken in half. That doc tried to remove rods, was unsuccessful and added 6 screws. Now found another spondylolisthesis location, severe scoliosis both front-to-back and side-to-side, advanced osteoporosis, and advanced osteoarthritis.. A rheumatologist found (after 4 years) that I have Ehler's-Danlos syndrome, which involves a genetic error in collagen and there are too many symptoms to mention - but - one symptom is Mitral Valve Prolapse.*

I am waiting to hear from my Nevro rep, but what I've noticed is that whenever I change a setting on my Nevro remote, my heart hammers like crazy for a while. It's taken me almost a month to put 2 and 2 together. I will definitely continue to update you all. btw, I am 63.

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Replies to "Hello, and thank you for your help in steering me to the proper group! I had..."

Please give us a current update on the Nevro implant. Thanks

Hello, just wondering if you are having any success with the nevro implant?

I have the nevro implant with 5 programs, each program has 7 levels. My rep quit calling me. I just kept raising a level every 2 days like I had been instructed. I'm at programs 4, level 7. I am able to walk a bit better but still take pain meds. I have idiopathic neuropathy. I believe I was allergic to Levaquin and Cipro over 20 years ago and I started on this journey of mind numbing pain in both feet. I have tried everything. Acupuncture, chiropractic, Gabapentin, Lyrica, cymbalta, etc. My dr said spine surgery could possibly paralyze me...that is too daunting to attempt. That dr also warned me the spine stimulator wouldn't work. It did during the trial, but I am having a hard time reproducing the result I had with the trial.