Thank you for your post on my discussion thread. My husband is under the care of a research oncologist at the University of Chicago Medicine and the treatment he has him on for the chronic GVHD is steroids and ProGraf. We have not heard of Jakafii. In order to keep his leukemia in remission, he is on Imbruvica. They have tried to cut back on steroids this summer to help with the side effects but we have not noticed any difference in his condition and the doctor told us we probably won't see any. If we can just get some relief for his eyes and ears, his quality of life would be so much more tolerable. He has dry eyes, constant irritation, light sensitivity and has to use a magnifying glass to read his computer screen. He doesn't try to read or watch TV because his eye sight is so poor. He wears hearing aids but he still can't hear normally.

What kind of issues has your husband experienced and does he have chronic GVHD?