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Is it safe to stop gabapentin? How?

Neuropathy | Last Active: Jul 29, 2022 | Replies (79)

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@johnbishop

Hello @pepsi97, I would like to add my welcome to Connect along with @colleenyoung. I'm have no medical training or background but I do have small fiber peripheral neuropathy and I let it go for 20+ years before getting a diagnosis. When I first started asking questions again prior to the diagnosis my primary care agreed it was neuropathy and prescribed gabapentin. My only symptoms were numbness in the feet and legs. I had no pain. After taking the gabapentin for 2 weeks, it did nothing to help with the numbness. I went back to my primary care doctor and she consulted with her team at the Mayo Family Clinic where I go and after answering a few more questions the lead doctor told me gabapentin only helps with pain and does nothing for numbness.

It was easy for me to stop taking the gabapentin because I hadn't been on it very long but I also would suggest consulting with your doctor before you stop taking the drug.

As far as the numbness goes, when I finally met with the Mayo Clinic neurologist and was diagnosed with idiopathic small fiber PN, he confirmed again that there are no treatments that help with numbness. There are a few discussions you may be interested in reading through or posting questions you may have.

Living with Neuropathy - Welcome to the group: https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/
Numbness in lower extremities: https://connect.mayoclinic.org/discussion/numbness-in-lower-extremities/

@pepsi97, did your neurologist do any tests or take a skin punch biopsy to provide a diagnosis?

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Replies to "Hello @pepsi97, I would like to add my welcome to Connect along with @colleenyoung. I'm have..."

Hi there! Yes, the neurologist did a complete neurological exam but she couldn't find anything wrong with me aside from my numb toes. They're numb since April after one month my job forced me to stay on my feet all day long. Not being used to staying on my feet so long, I guess I pinched the nerves of my toes. Gabapentin helps me right now, even if it's a small dose. But now not having health insurance the neurologist wouldn't want to see me without paying her, even if it's just a fast consultation. Doctors in Romania don't care about patients at all, they only want money. Living in Romania is very hard.
I just hope I can safely stop using gabapentin on Sep or Oct to see if the numbness returns.