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Bad news

Epilepsy & Seizures | Last Active: Apr 2, 2023 | Replies (32)

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@maggiek

Re: @jakedduck1 posted a new Discussion "Bad news"

Sorry about your issues ....always a miserable set back for sure. I have learned when I need to pull back from driving for however long it takes me to not have any seizure like events at all. As difficult as it is I fear what may happen to others if I don’t. The last time I had a seizure, my doctor upped my dosage and I didn’t drive for two weeks free of any side effects or events. Better than the two years it used to be. She knows me. I’ve dealt with my epilepsy for over 50 years, and I guess we are all different , just so so happy I have been controlled on medication for the most of those years. Having given up my vehicle we now have just the one, and much like not driving due to seizures, I mind that loss of Independence more than anything. I don’t like imposing on others, and more over I really miss the sense of independence. I am truly fortunate to have a husband who drives and does Most of the shopping and errands.
Would be interested in knowing what others With epilepsy who feel stranded do for shopping, groceries, and medications? Covid has certainly not helped in that regard.
And maybe it has, what with delivery and all. But there is still the sense of isolation that’s not healthy.
We live in a rural area, if I were alone and things progressed so I couldn’t drive it would be scary. Moving closer to town And transit would be my only alternative. That would be hard too!
Love where we live.

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Replies to "Re: @jakedduck1 posted a new Discussion "Bad news" Sorry about your issues ....always a miserable set..."

I’ve had epilepsy for over 49 years and I’ve been fortune not of had a lot of them. I had a seizure after 23 years of no seizures. You’d think my doc would have been concerned-no. I can’t drive for 3 months (self induced). My husband helps, or drives if I need to get around. I’ve also found it’s ok to ask someone. Don’t know if it’s good or bad, but my meds get mailed to me. Do you know of anything that can affect our anti convulsant levels? Other meds, weight gain or loss, food…Thanks!
Hope you are feeling well.