Hi @tongc333 and welcome to Mayo Clinic Connect. Members are here to lend support and share their own experiences, but not to offer medical advice or a diagnosis. However, I can understand your reaching out to hear from others who may have had similar symptoms, since even the specialists appear to be stumped.
Would you mind telling us your age and sex? What possible causes did the urologists investigate or rule out? What contributed to the pelvic floor dysfunction?
I am a 31 year old male. I have had 2 bladder scopes that revealed no abnormalities. The pelvic floor dysfunction is a total mystery and slowly developed from the start of the chronic urination until it became severe. The only abnormalities on my pelvic scans were seminal vesicle cysts and red bone marrow reconversion. No doctors gave this any serious thought and dismissed both of them as red herrings. So basically I have significant side effects with zero clue of why.